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Loeys-Dietz Syndrome Foundation Canada

Provides information, support, and resources to individuals suffering from Loeys-Dietz Syndrome.
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Online peer support Facebook group for families affected by Loeys-Dietz syndrome.

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Provides online information and resources for individuals with Loeys-Dietz Syndrome and caregivers. Includes:
  • Diagnosis support
  • Treatment options
  • Surgery preparation guides
  • Fitness guides
  • General information

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Offers free, confidential, and non-medical support and referrals by phone for individuals living with Loeys-Dietz syndrome, their care partners, and healthcare professionals.


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